Thomas Nudi’s film was premiered on September 12th at the Skyline Indie Film Festival in Winchester, Virginia. He also recently screened at the Rendezvous Film Festival in Amelia Island, FL where it was nominated for Best Feature Documentary.

He filmed and produced the film in two and a half years where he follows the Humphrey family, who’s daughter Fiona suffers from a rare disease called Sanfilippo Syndrome. The syndrome is rare and is an autosomal recessive lysosomal storage disease that affects the brain and spinal cord.


Film poster